Tuesday, December 15, 2009

Chatter.

I'm trying to recover after finding out we are losing our speech therapy services. We cannot follow our current ST ... as she is going to a facility that currently only serves adults. Our current facility does not have a replacement ST as of right now ... they claim they are working on it.

So after this Thursday, we no longer have private speech therapy. Grr. And ... there really are no other places in our area that accept insurance, so that is not an option either.

Praying I find an option soon.

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Today is the last day to have a chance at winning the iPod Touch or quilt ... and more importantly, to help Zhora try to find a family. We have raised $710 so far ... trying to make it $1,000!



Don't forget that if you have donated and also have increased your odds by blogging, facebooking, tweeting or emailing ... make sure you let me know so I can make sure you get your extra entries into the drawing!

Thank you to everyone who has supported Zhora thus far!

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Know anyone that might be in need of an Extreme Home Makeover?

My favorite new website ... Wish Upon a Hero ... has teamed up with Extreme Home Makeover to grant one person's wish to have their home reconstructed!

Click here for more details.

Saturday, December 12, 2009

12 Days of Giving: Day 12

Life with Bubba, Chicky and Nika

For the first 12 days of December, I am hosting the 12 Days of Giving here on my blog. For more information on what this is all about or how you can participate ... click here.

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I have always dreamed of the day that I would be able to have mother/daughter time with my daughter(s) doing girly things ... shopping, getting a pedicure, whatever.

After Payton was born and diagnosed with Down syndrome, my dreams were sort of pushed further out. I mean, the reality is that it takes my girls longer to gain interest in these types of things.

But today ... dang nab it ... I decided it was time.

So Payton and I headed out to get pedicures.

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And when we got there, I noticed they had just got two new chairs for kids ... how cute is that?! One small problem ... Payton would not let them come anywhere near her.

Not near her.

Not near her feet.

In fact, I'm pretty sure they were not even allowed to look at her. Ha. Stinker.

So I was the only one who ended up with pretty toes today, although if Payton had her way ... they would not have been able to touch my feet either. I think she thought they were going to hurt me -- she got so mad at them!

Today my gift of giving was to give myself a pedicure with my daughter ... even if she did not oblige.


Thursday, December 10, 2009

12 Days of Giving: Day 10

Life with Bubba, Chicky and Nika

For the first 12 days of December, I am hosting the 12 Days of Giving here on my blog. For more information on what this is all about or how you can participate ... click here.

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When I was growing up ... life was good. Then ... when I was about 13 years old, my parents got divorced. And quite frankly ... my life changed.

We went from living in a single family home with a pool ... to living in a two bedroom apartment. My sister and I shared a room for the first time in our lives. We got a leather coat for Christmas one year --- to share.

I always knew my mom struggled ... but she never really let us in on how much she struggled.

In hindsight ... I see it. I recognize it. I appreciate it.

It made me who I am today. And for that I am thankful.

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Several weeks ago, my friend told me that her husband had been laid off from his job. She is a stay-at-home-mom and he provided their main source of income. This lay off was unwelcome news ... especially after years worth of medical bills had piled up for their son -- causing debt that they had never dreamed was possible.

With the holidays approaching, I knew I had to jump into action. Because for me ... the true meaning of Christmas is giving.

Meet Kristen, Scott and Ethan ... if you don't already know them.

Kristen and Scott are wonderful parents and advocates for Ethan ... a little man with a lot under his belt. In his eight short years of life, he has experienced a ridiculous amount of hurdles ---> Down syndrome, four days in the NICU, Acute Lymphoblastic Leukemia, three years of chemotherapy, severe reflux, aspiration, Autism, non-verbal, Sensory Processing Disorder, Tethered Cord Syndrome, eating issues ... and the list goes on.

Yet ... he continues to smile and light up a room!

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Aside from their current financial problems, Kristen and Scott have not really celebrated Christmas for the last several years ... click here to read more about that.

All the more reason for me to jump into action.

So I wrote to some of my fellow moms of children with Down syndrome. I put Kristen, Scott and Ethan's story out there ... and asked for their help.

And what I got in return was more than I could have ever imagined!

To say that everyone stepped up to the plate is a huge understatement. I have been brought to tears many times over the past several weeks ... just watching everything come together.

You can count on our donations!!!

LOVE-LOVE-LOVE the idea and Ethan. Tell me what, where, when, how much, how to and I WILL.

Count me in also! What an amazing family!

Package after package arrived on my doorstep ... packed with things for Kristen, Scott and Ethan. All of this from my friends ... most of whom had no idea who Kristen, Scott and Ethan even were.

But they were touched that deeply.

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So today my friend ... Linda ... and I drove almost 6 hours and showed up on Kristen, Scott and Ethan's doorstep. Did I mention we did not tell them we were coming?

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We visited for a few hours ... and before we left, we casually mentioned that we had a few things in the car for them. Just a few.

And as we carried all the gifts into the house ... Kristen and Scott just stood there ... pretty much frozen.

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And they took in God's good graces.

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Because that is exactly what it was ... a God thing.

In the end, we decided to give them all the gift cards and cash that was collected today, rather than wait until Christmas. My heart just swelled with joy.

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Thank you to everyone who made this possible. In the end ... what matters is not that we have given ... but the happy souls on the receiving end.

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Our little man -- Zhora


Just a little shameless plus for our little man Zhora ---> please consider sponsoring him and helping him to find a family!

$10 ... it is all it takes. And you could end up with an iPod Touch or a beautiful quilt!

We can't let him end up in an institution. We can't let him die.

Please? Click here to read all about it ...

Wednesday, December 9, 2009

12 Days of Giving: Day Nine

Life with Bubba, Chicky and Nika


So ... I've had something up my sleeve for awhile. But I can't tell you what it is ... yet.

I'm sorry!

But today I gave my time. I gave several hours of my time working on this little project for someone.

More to come ...