God bless her soul. She will remain in the hospital for 28 days and then in this halo for months. Please continue to pray for her, as she is in quite a bit of pain right now. If you would like to send well wishes to Kennedy and her family, click here for their blog or click here for their temporary address while in the hospital. Ms. Kennedy has been through more than her fair share of medical issues {mostly thanks to that extra chromosome} and it is her turn for a break!
Showing posts with label AAI. Show all posts
Showing posts with label AAI. Show all posts
Wednesday, July 2, 2008
Remember Kennedy?
I posted a few days ago asking for prayers for Ms. Kennedy. She had her surgery today for AAI and AOI. After more than seven hours, she came out of surgery looking like this ...
God bless her soul. She will remain in the hospital for 28 days and then in this halo for months. Please continue to pray for her, as she is in quite a bit of pain right now. If you would like to send well wishes to Kennedy and her family, click here for their blog or click here for their temporary address while in the hospital. Ms. Kennedy has been through more than her fair share of medical issues {mostly thanks to that extra chromosome} and it is her turn for a break!
God bless her soul. She will remain in the hospital for 28 days and then in this halo for months. Please continue to pray for her, as she is in quite a bit of pain right now. If you would like to send well wishes to Kennedy and her family, click here for their blog or click here for their temporary address while in the hospital. Ms. Kennedy has been through more than her fair share of medical issues {mostly thanks to that extra chromosome} and it is her turn for a break!
Friday, January 25, 2008
Test Results
Our pediatrician just called regarding the AAI x-rays we had taken on Payton the other day. Everything looked normal, so that is great news.
Regarding her upcoming T&A, I'm trying to get it switched to have the surgery done in the hospital. I've learned that kids with DS have a tendency to have bad swelling and perhaps bleeding. The swelling could make her throat swell shut and cause her to be unable to breathe. Yikes. So I'm pushing for an overnight stay for her surgery.
I also forgot to mention the other day that the ENT could not locate the tube in Payton's right ear, so it may have fallen out already, in less than a year. Ugh. So he is going to look when she is knocked out for surgery and if it is missing, then he will replace it.
Regarding her upcoming T&A, I'm trying to get it switched to have the surgery done in the hospital. I've learned that kids with DS have a tendency to have bad swelling and perhaps bleeding. The swelling could make her throat swell shut and cause her to be unable to breathe. Yikes. So I'm pushing for an overnight stay for her surgery.
I also forgot to mention the other day that the ENT could not locate the tube in Payton's right ear, so it may have fallen out already, in less than a year. Ugh. So he is going to look when she is knocked out for surgery and if it is missing, then he will replace it.
Wednesday, January 23, 2008
Sign us up for surgery
We saw Payton's ENT today and we are officially scheduled for a tonsillectomy and adenoidectomy (aka: T&A) on 2/28/08. It will be done on an outpatient basis since she does not have any heart issues, otherwise it would have been done in the hospital. In addition to helping her sleep apnea, we are hoping the adenoidectomy will help with her persistent runny nose.
During a T&A, the doctor hyper-extends the neck. This is a problem with kids with Down syndrome, due to their risk of having instability in their atlanto-axial joint in their neck. Typically, an x-ray is taken at 2-3 years of age to see if they have the instability. I wanted Payton's x-rays done prior to her surgery, just so we know what we are dealing with. Her geneticist also wanted it done now for general reasons, because she is so active. If she has the instability, that means she cannot be put in a position that would hyper-extend her neck (i.e. somersaults, wrestling with her brother, etc). Yikes ... we may have a problem there.
Long story short, her ENT gave us the script for the x-ray and we went and had that done today too. Try telling a two year old to stand still, arms down and at a 90 degree angle with the wall ... right. Then try telling a two year old to do that, but to tilt their head down, and then back. We managed to get a few shots so hopefully the radiologist will be able to tell is she has AAI. I pray that she does not.
During a T&A, the doctor hyper-extends the neck. This is a problem with kids with Down syndrome, due to their risk of having instability in their atlanto-axial joint in their neck. Typically, an x-ray is taken at 2-3 years of age to see if they have the instability. I wanted Payton's x-rays done prior to her surgery, just so we know what we are dealing with. Her geneticist also wanted it done now for general reasons, because she is so active. If she has the instability, that means she cannot be put in a position that would hyper-extend her neck (i.e. somersaults, wrestling with her brother, etc). Yikes ... we may have a problem there.
Long story short, her ENT gave us the script for the x-ray and we went and had that done today too. Try telling a two year old to stand still, arms down and at a 90 degree angle with the wall ... right. Then try telling a two year old to do that, but to tilt their head down, and then back. We managed to get a few shots so hopefully the radiologist will be able to tell is she has AAI. I pray that she does not.
Subscribe to:
Posts (Atom)