Love that chick.

Payton is by far the pickiest eater in our house... behavioral as it may be. Her speech therapist spends about 15 minutes of each session working with her on eating different textures... and trying to do so without gagging. She has a very sensitive gag reflex... and if she had it her way... her diet would consist of the following...

• pizza
• chicken nuggets
• french fries
• yogurt
• chips

She will eat other things like spaghetti, chicken quesadillas, oranges and such... she just prefers not to. And thank goodness she does not make her own meal choices. I swear her eating could easily become a battle... but I try to be patient with her. I cannot imagine that she prefers to gag when eating a variety of foods. Chew, chew, chew is a common phrase at mealtime.

Sigh.



I get on these little kicks where I decide that I will not accommodate her behavioral meal choices anymore... and give her what the rest of the family is having. Because I know she can eat it... she just would rather have chips. And sometimes... when I don't feel like fighting the fight... I do make her a separate meal.

A few nights ago I used my menu planner and made chicken parmesan for dinner... with a side of corn. And I sat there with Payton until she ate every last bite of her chicken and at least a few bites of her corn. She gagged all the way through it and I chanted... chew, chew, chew. Her technique was less than desirable... chewing her chicken at the front of her mouth, likely secretly hoping it would just fall out. I nipped that in the bud... but now I am questioning myself.

Payton woke up in the middle of the night vomiting up her entire dinner. Like... several times. Did she have a bug? If she did, no wonder she didn't want to eat. Or was it her less than desirable chewing and swallowing technique of this food that she had no desire to eat? I am afraid maybe the food never made it completely down her esophagus.

Hopefully it was just a bug.

Even though she seemed to be feeling fine... I kept her home from school and took her in to be swabbed for strep. Negative. Days like that are some of my favorite times spent with my kids. Lazy day around the house... just the one child and I. 



Taking care of them... being a momma. Snuggling in bed for afternoon nap.



Payton... close your eyes and pretend you are sleeping.



Haha... love that chick.

::

I received the identification bracelets I ordered for the girls in the mail the other day. There has been a lot of discussion about what information the bracelets should actually contain.

Bracelets ordered from here.

On a whim after the great Barbie jeep escape... I ordered them with name, address and the cell phone numbers of both Kyle and I. After thinking it through and getting feedback from a few police officer friends... I think I need to order another set of bracelets with just our phone numbers on them.



And while I would love to have the girls wear these bracelets every minute of every day... I am not sure it is really feasible. I am just not sure... I am struggling with this. And the bracelets obviously will only go so far to help if the girls did end up missing... depending on the situation and whether or not they are found by the right person. That said... I am glad to have them for times when we go on vacation or to an amusement park... and other places of the like.

Meanwhile... I spoke with a Deputy Sheriff friend of ours about the Project Lifesaver. Unfortunately... our county has a waiting list due to budget restraints. So... this is not an option for us right now. We could get our own bracelets... but I am still on the fence... and I am not sure why. I don't know... I just want my girls to lead their lives as normal as possible... but at what point does it become too late? I do think... however... that I will be getting this for those times that we need it.

Decisions, decisions.

::

We are knee deep in all things IEP, FAPE, IDEA, ESY, LRE, PLOP*... and so on. We have Payton's kindergarten eligibility meeting in two weeks... and I am anxious, to say the least.

I have consented to the psychological testing for Payton and I am not sure if that was the right thing to do. I am feeling at peace with the decision... right this moment... but in five minutes I could read something that will change my mind. The outcome of this testing will determine her label... she will lose her DD* label... and I am okay with that... as long as it does not affect the services she will receive.

I could go on and on... but I won't since the end result is all that matters and I will update on that once we are there. If you are a parent or teacher or anyone else that is involved in inclusion of a child with Down syndrome... please feel free to join a new group that I created on facebook. We are up to 326 members nationally... well, even internationally... and there is a ton of great information.

IEP = Individualized Education Program
FAPE = Free Appropriate Public Education
IDEA = Individuals with Disabilities Education Act
ESY = Extended School Year
LRE = Least Restrictive Environment
PLOP = Present Level of Performance
DD = Developmentally Delayed

::

Headed to California later this week for the national Juice Plus+ conference... so excited. The conferences are always so inspiring... and they remind me why Juice Plus+ is such an integral part of our health.

We are also having a DS mommas meet up at City Walk while I am there... email me if you want to join us!

Until it is you.

So I have had all these intentions of finishing a blog post that is half drafted about um ... not much. But then today rolled around ... and this momma was dealt a bit of a scare. And it isn't so much the scare that I want to focus on ... yet how to prevent this from happening again.

Because with these two chicks ... I know it is bound to happen.

Earlier this afternoon, I lost the girls. We were all outside playing ... they were riding around in their jeep and Mason was playing basketball. I ran inside to get my shoes and the next thing I know ... Mason came running in telling me something was seriously wrong.

The girls were missing. He had gone around the side of the house to get a ball and in that time ... they had driven off. He ran down the street where he thought they had gone ... nothing.

About 20 minutes later ... after sobbing, driving around our side streets like a maniac, sobbing some more, asking my neighbors for help, sobbing and getting the police involved ... they were found. They had made their way to a trail that runs back behind our houses ... ditched their jeep and were walking hand-in-hand.

With not a care in the world.

And this is my concern. I am really not a fan of characterizations, but seriously ... children with Down syndrome like to flee. We have to keep a close eye on the girls ... and Mason ... bless his heart ... is a great second set of eyes for us. And as much as it is not his job ... he really takes it upon himself and that is a huge help since ... you know, I don't have eyes in the back of my head.

The difference is that my girls will take off and just do their thang. They have no clue how far they are from home ... or that they are lost ... or that they have no clue how to find their way home. They have no sense of fear.

As I have been rehashing this in my mind today ... I have found myself comparing my girls to Mason. If Mason ever came close to getting lost when he was younger, he would shriek out in fear ... "Mom! Mom!" And the tears would flow.

My girls? Not so much. 

So I am carrying a conversation from facebook over here to my blog ... because I think it is important. I have seen these little electronic monitoring bracelets that some kids with special needs are wearing ... I just have not been sold.

Until now. Until it happens to you in the two seconds you looked away. Because that is how it happens. And you never think it will be you ... until it is you.

After we were reunited with the girls ... one of the police officers asked Payton her name. I had to explain to him that she can't say her name. My five year old cannot say her name. She cannot tell you who her parents are. She does not know what her address is. Nor does she even know what city she is from. I think that was hard for him to understand, but he was very nice about it.  

It just really made me think.

Sad that it takes something like this for me to prepare for the next time ... if there is a next time, God forbid. This isn't the first time Payton has been lost ... but I think having the police involved made it that much more grand.

Here are some things I am doing ...

1) Those little ID cards they send home from school? Or even the ones you can have made at your local Sheriff's office? Keep them. Put them in your wallet. Know exactly where they are. 

*The officers were running around my house looking for pictures of the girls. Current pictures. I was in such a panic ... I couldn't even think. I didn't even know where to look ... in my own house. I had one of our Christmas cards laying on the counter (see ... I knew my mess of a house was good for something) and the officer snapped pictures of each of the girls into her cell phone, uploaded it to dispatch ... err something ... and told me that each of their photos would pop up on the screen of every squad car. Freakin technology is awesome. But even more awesome would be having a mom that is prepared for something like this.

2) ID bracelets. I just ordered each of the girls one of these ... I imagine I will put them around their ankles, but we will see how that works out. For $8.95 each ... I figure I cannot go wrong.

3) I am looking at this or this or this ... and wanting more suggestions as to what might be best.

That's all. My head hurts. My babies are safe and sleeping in their beds. Never a dull moment ... that is for sure.